Maybe morning should be my blogging time; it seems to be when I'm feeling suitably melodramatic.
Today for the first time I wonder if it might have been a mistake to buy the house. Like me, it wants for so much fixing. We are both high maintenance, leaky, cracked, jerry-rigged but still beautiful, needy if we're being honest with ourselves, and I wonder if there's really room in this life for the both of us; there don't seem to be enough resources to sustain us.
For the first time I remember, I've started craving sunshine so much I can't enjoy rain. I miss the overwhelming, careless plant growth that happens everywhere back east. I'm hungry for blues and browns and greens, for ultramarine and scarlet, for distilled malachite and skies so bright you can barely see. I'm hungry for wet heat that slams into you like a wall when you walk out of the air conditioning at the airport, wide lazy rivers that are barely cool at all, and the lush, dense forest that asserts itself when water is no object--where nothing chokes out life but other life.
This is better, probably--it's a different kind of sadness than what I'm used to. The old things are still present, but this is here also--carrot, tantalizing, painful but drawing me from my rut. I hope.
Showing posts with label living with disability. Show all posts
Showing posts with label living with disability. Show all posts
Monday, May 24, 2010
Thursday, April 29, 2010
I'm angry at the world about a roof.
My house needs a roof. I want a metal roof. It would last three times as long and be completely recyclable, and it costs two thousand dollars more. I don't have it. In order to get a metal roof, I would, basically, have to not spend money on anything for the next several months.
It's the small things, yeah? There's no reason I shouldn't have clothes that fit me and don't have holes in them, and buy fresh groceries, and own shoes that don't hurt to walk in, and have access to a swimming pool so that I can exercise on the days that hurt the most. I discover, this is a startlingly big part of taking care of myself--prioritizing my material needs. I hate that, to take care of myself now, there must be such a waste of resources--that to make it through one summer entails such a throwaway, a cheap and wasteful decision that will last fifteen years.
I'm not giving up, of course--creative and resourceful money management is in my brain and blood. Waste angers me.
My house needs a roof. I want a metal roof. It would last three times as long and be completely recyclable, and it costs two thousand dollars more. I don't have it. In order to get a metal roof, I would, basically, have to not spend money on anything for the next several months.
It's the small things, yeah? There's no reason I shouldn't have clothes that fit me and don't have holes in them, and buy fresh groceries, and own shoes that don't hurt to walk in, and have access to a swimming pool so that I can exercise on the days that hurt the most. I discover, this is a startlingly big part of taking care of myself--prioritizing my material needs. I hate that, to take care of myself now, there must be such a waste of resources--that to make it through one summer entails such a throwaway, a cheap and wasteful decision that will last fifteen years.
I'm not giving up, of course--creative and resourceful money management is in my brain and blood. Waste angers me.
Friday, April 23, 2010
Tuesday, there was a cinnamon roll--breakfast, grabbed on the way to class--without guilt. A cinnamon roll, a banana, a glass of water, that I did not feel ashamed of, did not want or try to hide. An incidental meal, eaten without caving to the sugar and fat and lack of whole grain--without thinking, how dare I violate this propriety--thinking, I'm hungry, it's time to eat. And I'm going to eat what I want to.
When I got there, Newlin turned around to me and gave a big thumbs up; same breakfast. Is this how normal people eat? So relaxed, casual?
I see my body mostly as betrayal. Its fatness, its roundness; its weakness. Injury and breakage and pain that must constantly be accommodated. Needs for food and sleep and rest that are always slowing me down. Helplessness, fear. I want to live in a body, yes, but I want to live in a fighter's or a dancer's body, lithe, powerful, open, graceful, strong. Something for living a fiery and glorious and short life that also isn't mine.
For the first time I catch a glimpse of it, my body, my broken body as it is now, as some sort of victory. I have been taking care of myself, in some way; there are other parts of me deserving of care, not just this body on which the war has been waged, other needs besides hunger that deserve to be filled. This has been my compromise, my choice, my survival--and maybe that's ok. Maybe it's alright to be the marginalized fat woman, forever explaining to people that I didn't need that lover or that job, I never expected to live past thirty, thirty five. May be a freedom worth having, keeping, holding up against the world.
It's not a choice to say no unless you can say yes.
I don't want to always say yes, but for now--for now, yes. Glorious.
When I got there, Newlin turned around to me and gave a big thumbs up; same breakfast. Is this how normal people eat? So relaxed, casual?
I see my body mostly as betrayal. Its fatness, its roundness; its weakness. Injury and breakage and pain that must constantly be accommodated. Needs for food and sleep and rest that are always slowing me down. Helplessness, fear. I want to live in a body, yes, but I want to live in a fighter's or a dancer's body, lithe, powerful, open, graceful, strong. Something for living a fiery and glorious and short life that also isn't mine.
For the first time I catch a glimpse of it, my body, my broken body as it is now, as some sort of victory. I have been taking care of myself, in some way; there are other parts of me deserving of care, not just this body on which the war has been waged, other needs besides hunger that deserve to be filled. This has been my compromise, my choice, my survival--and maybe that's ok. Maybe it's alright to be the marginalized fat woman, forever explaining to people that I didn't need that lover or that job, I never expected to live past thirty, thirty five. May be a freedom worth having, keeping, holding up against the world.
It's not a choice to say no unless you can say yes.
I don't want to always say yes, but for now--for now, yes. Glorious.
Labels:
anxiety/depression etc.,
dance,
ethics,
food,
housekeeping,
living with disability,
violence
Thursday, April 22, 2010
As soon as I finish this semester's work, I'm taking a year off. People keep asking me what I plan to spend it on, and it's been hard to answer. This is the answer: Learn to take care of myself.
Here's the longer answer:
Pick a reasonable standard of cleanliness and organization, and implement it (no more feeling guilty when my house is dirty and when I spend time cleaning it)
Make good decisions about what to own--includes culling accumulated junk and old files, as well as careful budgeting
Get in the habit of maintaining the things I own, in very good repair
Keep working on good financial habits
Work on certifications (at work) or other projects for long term financial independence
Develop better work habits for personal projects
Focus on taking really, really, really, really good care of my back
Learn enough compromise, body awareness, and ability to ask for help to keep up with basic life stuff without further injuring myself
Get in the habit of keeping up on medical care, including the small stuff
Learn food skills--cooking, rotating food, gardening, planning
Get PTSD under control. . . maybe the depression too. . .
Come to some terms with fear and happiness and whatever else seems urgently important, emotionally
Deal with the emotional stuff that has to get out of the way before I can fix disordered eating
Develop the network and skills to have a really rich, diverse, and satisfying social life
Become more emotionally independent (or, less dependent on social contact to "feel better"/escape)
Study only what I want to study
Try to enjoy life (?)
this last one is hard.
It's especially complicated to summarize when you're trying to explain why you aren't doing what (I guess?) people are supposed to do these days--pack their schedules very very full, and let all of this "taking care of yourself" stuff just happen. Some of this I don't know how to do, or I have bad habits about, because my parents taught me more about Fermat's last theorem than how to take care of a body or a house. A lot of it, I feel I don't deserve. This is a common trauma related thing, I hear--I guess I'll add another list item: get rid of unnecessary guilt.
I'm not going to go to school, volunteer, do political work, or commit myself to academic projects for other people. I'm just going to learn to take care of myself--for myself. For a time.
Here's the longer answer:
Pick a reasonable standard of cleanliness and organization, and implement it (no more feeling guilty when my house is dirty and when I spend time cleaning it)
Make good decisions about what to own--includes culling accumulated junk and old files, as well as careful budgeting
Get in the habit of maintaining the things I own, in very good repair
Keep working on good financial habits
Work on certifications (at work) or other projects for long term financial independence
Develop better work habits for personal projects
Focus on taking really, really, really, really good care of my back
Learn enough compromise, body awareness, and ability to ask for help to keep up with basic life stuff without further injuring myself
Get in the habit of keeping up on medical care, including the small stuff
Learn food skills--cooking, rotating food, gardening, planning
Get PTSD under control. . . maybe the depression too. . .
Come to some terms with fear and happiness and whatever else seems urgently important, emotionally
Deal with the emotional stuff that has to get out of the way before I can fix disordered eating
Develop the network and skills to have a really rich, diverse, and satisfying social life
Become more emotionally independent (or, less dependent on social contact to "feel better"/escape)
Study only what I want to study
Try to enjoy life (?)
this last one is hard.
It's especially complicated to summarize when you're trying to explain why you aren't doing what (I guess?) people are supposed to do these days--pack their schedules very very full, and let all of this "taking care of yourself" stuff just happen. Some of this I don't know how to do, or I have bad habits about, because my parents taught me more about Fermat's last theorem than how to take care of a body or a house. A lot of it, I feel I don't deserve. This is a common trauma related thing, I hear--I guess I'll add another list item: get rid of unnecessary guilt.
I'm not going to go to school, volunteer, do political work, or commit myself to academic projects for other people. I'm just going to learn to take care of myself--for myself. For a time.
Tuesday, April 06, 2010
Dear body,
I propose a truce. You will not hurt all the time, and I will try very, very hard not to hate you. I will not get angry about how squishy you are, I will not daydream about impaling you on things, I will be excruciatingly careful with you, and I'll try to give you all the healthy delicious food, exercise, and painkillers that you need.
Sound good? Think it over. We can talk about it in the morning.
-Day
I propose a truce. You will not hurt all the time, and I will try very, very hard not to hate you. I will not get angry about how squishy you are, I will not daydream about impaling you on things, I will be excruciatingly careful with you, and I'll try to give you all the healthy delicious food, exercise, and painkillers that you need.
Sound good? Think it over. We can talk about it in the morning.
-Day
Thursday, April 01, 2010
Today was different; feels of possibility. I woke up to an alarm after five hours sleep to finish writing about Irigaray, finished that in plenty of time and got ahead on my reading. After class, I spent four hours grocery shopping for my sister.
It was interesting. I was doing things for myself from an early age, but I've never shopped for a family of eight. The amount of planning involved--especially with a diet high in produce--is spectacular. Also, the repeated push-starting of the car (not my car, which would have completely stressed me out) and a mild blizzard contributed to the sense of adventure. :)
And now I'm home, in pain (a high 4) but thrilled. There are vegetables in my fridge, a backup jar of nutella in my pantry, and--perhaps most importantly--a dozen packets of seeds across my desk. I have been counting them, reading and re-reading, arranging them. I've narrowed it to four I definitely want to grow and six others in the running. They are my sister's seeds, shared because that's what we do, and because out of the packets that I choose, I'll only need a few. It's important not to get involved with too many different varieties. This is, after all, the girl who killed lavender and rosemary in Utah making her first beginner garden.
Before now I never appreciated how much fantasy goes into planning a garden, but I'm making up for lost time, savoring every choice in vivid detail. The nutty, crisp warm of biting into a parsnip? Or the high contrast of casper and sweet pumpkins sprawling across my yard, disconcertingly orange and white against the lush green of their vines? What do okra plants even look like? And what kind of tomatoes do I want for making my first eggplant parmesan completely from scratch?
I also have, from this afternoon, 20$ of un-designated cash in my coat pocket. I would hate to associate poverty with virtue, but I think that it (poverty) can, for some people in some circumstances, be good. I'm one of those people in one of those times; some alchemy of my current circumstances allows me to unpack the magic in a twenty-dollar bill like never before. I was recently out of gas, funds, and fresh food all at the same time, but still had my basic needs completely covered. Knowing what I can do without makes it easier to understand what the things I have are worth--and turns a small amount of cash into much more freedom than I thought it could be.
It was interesting. I was doing things for myself from an early age, but I've never shopped for a family of eight. The amount of planning involved--especially with a diet high in produce--is spectacular. Also, the repeated push-starting of the car (not my car, which would have completely stressed me out) and a mild blizzard contributed to the sense of adventure. :)
And now I'm home, in pain (a high 4) but thrilled. There are vegetables in my fridge, a backup jar of nutella in my pantry, and--perhaps most importantly--a dozen packets of seeds across my desk. I have been counting them, reading and re-reading, arranging them. I've narrowed it to four I definitely want to grow and six others in the running. They are my sister's seeds, shared because that's what we do, and because out of the packets that I choose, I'll only need a few. It's important not to get involved with too many different varieties. This is, after all, the girl who killed lavender and rosemary in Utah making her first beginner garden.
Before now I never appreciated how much fantasy goes into planning a garden, but I'm making up for lost time, savoring every choice in vivid detail. The nutty, crisp warm of biting into a parsnip? Or the high contrast of casper and sweet pumpkins sprawling across my yard, disconcertingly orange and white against the lush green of their vines? What do okra plants even look like? And what kind of tomatoes do I want for making my first eggplant parmesan completely from scratch?
I also have, from this afternoon, 20$ of un-designated cash in my coat pocket. I would hate to associate poverty with virtue, but I think that it (poverty) can, for some people in some circumstances, be good. I'm one of those people in one of those times; some alchemy of my current circumstances allows me to unpack the magic in a twenty-dollar bill like never before. I was recently out of gas, funds, and fresh food all at the same time, but still had my basic needs completely covered. Knowing what I can do without makes it easier to understand what the things I have are worth--and turns a small amount of cash into much more freedom than I thought it could be.
Wednesday, March 24, 2010
I miss my feet.
Dancer's feet are important, strong. When you dance you feel your feet, know exactly where they are. Foundation for everything, they can be more expressive than your hands or face. Lately, I've been walking a lot, and I feel them differently, torqued and sore from all directions, jelly, mush. They are overworked to stabilize my unconditioned stride.
Sometime 'round the end of January, a Very Awesome Friend invited me to hike to the Havasupai falls with his family in June. I was pretty thrilled at the chance; it seemed perfect in several ways. First, for all my cavorting about the country, I've never been to the Grand Canyon, and I'd wanted to see it this summer. Second, I've wanted to take up backpacking for half a decade now, but things keep interfering. Third, this particular Very Awesome Friend also has a Very Awesome Family, and who wouldn't jump at the chance to observe such a thing so close to it's natural habitat?
Initially, I was bummed. After the thirty seconds of jubilation, I remembered that I have a mutineer spine, and ten incredibly steep miles with a pack on seemed both unlikely and not bright. After several days of moping, I came to a compromise: I'd set up a training program and at least try. If I got injured along the way, I'd find a shorter more local hike to do and invite friends for a "celebration of failure" party.
Thus it came to pass that I abandoned the cautious exercise program I'd been, with so much self restraint, following for the past month and a half. I traded it in for the aggressive sort that falls somewhere in that gray and shadowed land between "unwise" and "categorically stupid."
It was going really well till Monday. I'd done a 13 miler on Friday at an incline setting of 5 (my commercial grade treadmill goes to 15). Then I'd had a really hard time sleeping for a couple of nights, and woke up hurting on Monday. . . then I planted a tree. And THEN I hiked another six miles. It was after the six miler, doing a careless/stupid forward-bend hamstring stretch, that the moment came.
Have you ever watched a potter use a wire cutter to take a vase off the wheel? It's a bit like that. All the pieces are intact, but something has definitely just shifted a bit sideways. The pain is sharp across that line, but also aching everywhere else. As you try to move a little in the moments afterwards there are hints and flashes that if you do something wrong, it will soon be shattering. You hold yourself up with your arms and you try to breathe, try to tense your core muscles, try to will them into putting whatever it was back.
It turned out not to be too bad. Definitely not another herniated disc; I can walk with ease. Still, the whole incident has been a reminder; dear self, this is what it's like to live in a body that can't be whole. It is more fun to ignore this, to try to forget this body is heavy and slow and weak, the kind that will give out on you indiscriminately, at seven o'clock on a Tuesday or five minutes before the biggest show of your life. Ultimately this is all human bodies, all of us, and it makes us nervous to know this something we'd rather forget. Some days I get lessons in remembering, and this is what I've learned.
It feels way better to get hurt doing something hard than washing your dishes or tying your shoe.
It feels weird to be able to walk thirteen miles up hill, then not to be able to tie your shoe four days later.
It feels weird to walk thirteen miles up hill, and not to dance.
I'm reminded of my college PE teacher, kindred spirit; as he put it, yeah, I know this isn't some kind of promise. Maybe I'll still die young, I could drop dead tomorrow of a heart attack or a stroke. . . but no matter what, I will die running.
I will die running.
Dancer's feet are important, strong. When you dance you feel your feet, know exactly where they are. Foundation for everything, they can be more expressive than your hands or face. Lately, I've been walking a lot, and I feel them differently, torqued and sore from all directions, jelly, mush. They are overworked to stabilize my unconditioned stride.
Sometime 'round the end of January, a Very Awesome Friend invited me to hike to the Havasupai falls with his family in June. I was pretty thrilled at the chance; it seemed perfect in several ways. First, for all my cavorting about the country, I've never been to the Grand Canyon, and I'd wanted to see it this summer. Second, I've wanted to take up backpacking for half a decade now, but things keep interfering. Third, this particular Very Awesome Friend also has a Very Awesome Family, and who wouldn't jump at the chance to observe such a thing so close to it's natural habitat?
Initially, I was bummed. After the thirty seconds of jubilation, I remembered that I have a mutineer spine, and ten incredibly steep miles with a pack on seemed both unlikely and not bright. After several days of moping, I came to a compromise: I'd set up a training program and at least try. If I got injured along the way, I'd find a shorter more local hike to do and invite friends for a "celebration of failure" party.
Thus it came to pass that I abandoned the cautious exercise program I'd been, with so much self restraint, following for the past month and a half. I traded it in for the aggressive sort that falls somewhere in that gray and shadowed land between "unwise" and "categorically stupid."
It was going really well till Monday. I'd done a 13 miler on Friday at an incline setting of 5 (my commercial grade treadmill goes to 15). Then I'd had a really hard time sleeping for a couple of nights, and woke up hurting on Monday. . . then I planted a tree. And THEN I hiked another six miles. It was after the six miler, doing a careless/stupid forward-bend hamstring stretch, that the moment came.
Have you ever watched a potter use a wire cutter to take a vase off the wheel? It's a bit like that. All the pieces are intact, but something has definitely just shifted a bit sideways. The pain is sharp across that line, but also aching everywhere else. As you try to move a little in the moments afterwards there are hints and flashes that if you do something wrong, it will soon be shattering. You hold yourself up with your arms and you try to breathe, try to tense your core muscles, try to will them into putting whatever it was back.
It turned out not to be too bad. Definitely not another herniated disc; I can walk with ease. Still, the whole incident has been a reminder; dear self, this is what it's like to live in a body that can't be whole. It is more fun to ignore this, to try to forget this body is heavy and slow and weak, the kind that will give out on you indiscriminately, at seven o'clock on a Tuesday or five minutes before the biggest show of your life. Ultimately this is all human bodies, all of us, and it makes us nervous to know this something we'd rather forget. Some days I get lessons in remembering, and this is what I've learned.
It feels way better to get hurt doing something hard than washing your dishes or tying your shoe.
It feels weird to be able to walk thirteen miles up hill, then not to be able to tie your shoe four days later.
It feels weird to walk thirteen miles up hill, and not to dance.
I'm reminded of my college PE teacher, kindred spirit; as he put it, yeah, I know this isn't some kind of promise. Maybe I'll still die young, I could drop dead tomorrow of a heart attack or a stroke. . . but no matter what, I will die running.
I will die running.
Labels:
dance,
dreams,
housekeeping,
living with disability,
sustainability
Tuesday, March 09, 2010
Today was even more useless than yesterday, so this evening I decided it was time to be cheerful already. I took a hot shower, made some chamomile tea, and attempted to bake a sweet potato and some oatmeal cookies. I turned the thermostat up to a scandalous 72 degrees, turned on all the lights, and put on the Schubert cd I have out from the library. I curled up in a ball by my favorite heat vent. I called my sister repeatedly till she got home, and then we talked for over an hour.
It worked out pretty well.
It's lead me to thinking about all the predictable things that have a big impact on my ability to deal with depression. Here are the ones I thought of, in a pretty good approximate order of impact:
Hunger
Pain
Cold
Lack of exercise
Lack of social contact
Lack of quiet moments
Lack of light
Lack of being outside
Lack of dancing
Lack of music
And of course, there are the episodic things that can make it flare up and be harder to control:
Physical trauma
Negative social contact
Difficult internal goings-on, like some new insight about myself that sucks
One thing that I haven't sorted out--ironically, for a Marxist--is what to think of the profound impact material goods can have on psychological functioning. I read once that, after the point of having enough that you aren't worried about subsistence, happiness doesn't correlate to absolute material wealth at all--only to relative material wealth in the society you're in. I wish I remember where I read that, since I have no idea if it's true.
So many things are made so much easier by a little bit of money. . . it almost makes it look like money could really solve things like depression--but it can't. Material resources offer the possibility that material problems can be solved--but there are attendant challenges. Sometimes the psychological problems that arise with wealth are as serious as the physical ones they've replaced.
One IAF thing I really like is the iron rule: Never do for others what they can do for themselves. Following this rule creates localized autonomy, a sense of accomplishment, and actual accomplishments--things that can really help with a problem like depression. I think that's key to the material resources issue, with depression especially; they can only help insofar as people are also given a real opportunity to do what they can for themselves.
It worked out pretty well.
It's lead me to thinking about all the predictable things that have a big impact on my ability to deal with depression. Here are the ones I thought of, in a pretty good approximate order of impact:
Hunger
Pain
Cold
Lack of exercise
Lack of social contact
Lack of quiet moments
Lack of light
Lack of being outside
Lack of dancing
Lack of music
And of course, there are the episodic things that can make it flare up and be harder to control:
Physical trauma
Negative social contact
Difficult internal goings-on, like some new insight about myself that sucks
One thing that I haven't sorted out--ironically, for a Marxist--is what to think of the profound impact material goods can have on psychological functioning. I read once that, after the point of having enough that you aren't worried about subsistence, happiness doesn't correlate to absolute material wealth at all--only to relative material wealth in the society you're in. I wish I remember where I read that, since I have no idea if it's true.
So many things are made so much easier by a little bit of money. . . it almost makes it look like money could really solve things like depression--but it can't. Material resources offer the possibility that material problems can be solved--but there are attendant challenges. Sometimes the psychological problems that arise with wealth are as serious as the physical ones they've replaced.
One IAF thing I really like is the iron rule: Never do for others what they can do for themselves. Following this rule creates localized autonomy, a sense of accomplishment, and actual accomplishments--things that can really help with a problem like depression. I think that's key to the material resources issue, with depression especially; they can only help insofar as people are also given a real opportunity to do what they can for themselves.
Monday, March 08, 2010
Today has been one of Those days. You know. The days by which this blog will earn its title.
Motrin is the elixir of life, but I'm living off of V8 juice that expired last week, dry handfuls of kix my mother bought me, and ramen. Every night I lay awake for forty minutes or an hour, trying to sleep, being cold and remembering things I've done wrong. Today I didn't get much done; I walked six miles, worked six hours, and attended a lecture for Marxism, laundry is behind but dishes are done. My entire torso hurts, and so do my limbs where they're attached to it. Everything is hectic; it would have helped her with her test, but I did not show isha-bear my favorite biology textbook. I'm lonely. More color might help me breathe.
I gave away the green wool coat, the one that boy I loved told me was fitting for me because it was really sturdy and so was I. I never quite could take that as a compliment. It's too small for me now; makes it hard for me to move my arms. I think it found a better home.
Motrin is the elixir of life, but I'm living off of V8 juice that expired last week, dry handfuls of kix my mother bought me, and ramen. Every night I lay awake for forty minutes or an hour, trying to sleep, being cold and remembering things I've done wrong. Today I didn't get much done; I walked six miles, worked six hours, and attended a lecture for Marxism, laundry is behind but dishes are done. My entire torso hurts, and so do my limbs where they're attached to it. Everything is hectic; it would have helped her with her test, but I did not show isha-bear my favorite biology textbook. I'm lonely. More color might help me breathe.
I gave away the green wool coat, the one that boy I loved told me was fitting for me because it was really sturdy and so was I. I never quite could take that as a compliment. It's too small for me now; makes it hard for me to move my arms. I think it found a better home.
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